...of the never-ending saga of the apnea monitor. I realized last night that I haven't even mentioned the cursed monitor lately, much less give a complete update.
First of all, yes, we are still using the monitor, but only at night. That alone has reduced much of the stress associated with it. His skin has time to recover from the leads during the day, and Patrick is much more mobile when we don't have to drag the monitor along with him. He travels more in and out of the house now. In addition, in the last few weeks, the alarm has only gone off a handful of times. We are rarely roused from our sleep because of the monitor's alarm anymore. All in all, things have already started looking up.
We should also be hearing back from the pulmonary specialist that Patrick saw a month or so ago. If you remember, he didn't really think Patrick still needed to be on the monitor but couldn't verify that opinion until he had enough data from the monitor to prove Patrick wasn't having attacks. Then the people who take care of the monitor lost all the data he needed, confining Patrick to the monitor for this last month. Tuesday, though, I had the monitor people come back out to the house, primarily to bring us more leads, but I figured that once they were here, they might as well download the data stored on his monitor. They are supposedly going to send the information to the pulmonary specialist. He had said if he had about a month's worth of data, it would probably be enough to take him off the monitor. He should have that by Monday at the latest, which means that by this time next week we could easily have the monitor gone for good. Please pray that everything goes as planned this time and that they don't lose the data or send it to the wrong place or any other number of unexpected problems don't arise.
And just to add a nice little twist to the drama, it appears as though our insurance doesn't want to cover the cost for the monitor. We've had numerous problems with insurance this week, which have all been taken care of already, so there's a good chance this is a mistake. Either way, we're a little concerned we're going to be billed for this monitor that has been nothing but a nuisance and was probably never necessary in the first place.
Ok, the monitor rant is over. Again today, I am begging for ideas for a new title for my blog. Yesterday's comments were great, but they didn't offer any suggestions for a title. Please help! No idea will be rejected.
First of all, yes, we are still using the monitor, but only at night. That alone has reduced much of the stress associated with it. His skin has time to recover from the leads during the day, and Patrick is much more mobile when we don't have to drag the monitor along with him. He travels more in and out of the house now. In addition, in the last few weeks, the alarm has only gone off a handful of times. We are rarely roused from our sleep because of the monitor's alarm anymore. All in all, things have already started looking up.
We should also be hearing back from the pulmonary specialist that Patrick saw a month or so ago. If you remember, he didn't really think Patrick still needed to be on the monitor but couldn't verify that opinion until he had enough data from the monitor to prove Patrick wasn't having attacks. Then the people who take care of the monitor lost all the data he needed, confining Patrick to the monitor for this last month. Tuesday, though, I had the monitor people come back out to the house, primarily to bring us more leads, but I figured that once they were here, they might as well download the data stored on his monitor. They are supposedly going to send the information to the pulmonary specialist. He had said if he had about a month's worth of data, it would probably be enough to take him off the monitor. He should have that by Monday at the latest, which means that by this time next week we could easily have the monitor gone for good. Please pray that everything goes as planned this time and that they don't lose the data or send it to the wrong place or any other number of unexpected problems don't arise.
And just to add a nice little twist to the drama, it appears as though our insurance doesn't want to cover the cost for the monitor. We've had numerous problems with insurance this week, which have all been taken care of already, so there's a good chance this is a mistake. Either way, we're a little concerned we're going to be billed for this monitor that has been nothing but a nuisance and was probably never necessary in the first place.
Ok, the monitor rant is over. Again today, I am begging for ideas for a new title for my blog. Yesterday's comments were great, but they didn't offer any suggestions for a title. Please help! No idea will be rejected.
Labels: Audience Participation, Frustration
4 Comments:
Okay. I know it's cheesier than cheez whiz, but all I can think of is Kathy's Corner. I will bust out the dictionary in a minute and see if I can come up with something more sophisticated. :)
Playing on the monitor. :) How about PATRICK'S DAILY MONITOR??
Hey, Tricia! That's pretty good! Kathy, I hope and pray that the monitor thing soon becomes a thing of the past for you. I can't believe that insurance now doesn't want to cover it! Nice time to tell you.
I had to think about names for awhile, so this is what I came up with: Age2Age, Minor Miracles, Are we there yet?, Houston Holt's Happenings, Raising Patrick, Conversing with Cathy.... If I think of any more, I'll let you know. For Patrick's great-grandma how about "Gamma", "Gammie" or "Gram"- there is a site called Grandboomers.com (I think I remembered that right) where future grandparents converse about what to be called.
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